Research Locations
Weis Center for Research
Hood Center for Health Research
Challenges of developing registries for small patient advocacy groups
Marc Williams, MD, Director of Geisinger's Genomic Medicine Institute, was among the presenters at the October 2012 Individualizing Medicine Conference at Mayo Institute in Rochester, MN. Click for a video of the conference.
Foundation for Genomics and Population Health - News
Foundation for Genomics and Population Health - Policy
Genetics Education Center, University of Kansas Medical Center
US Clinical Genetics Education Resources
Clinical Genetics: a Self-Study Guide for Health Care Professionals, a down-loadable course developed by the University of South Dakota
Frontiers in Clinical Genetics, a series of RealAudio lectures organised by the George Washington University, USA
American Academy of Family Physicians core educational guidelines for medical genetics
Resources for teaching genomics
Dolan DNA Learning Center, Cold Springs Harbor
The Genetic Science Learning Center, University of Utah
Genetics Education Center, University of Kansas
CME Education
Genetics and Your Practice Online, CME accredited, interactive course on the March of Dimes website. Free registration required.
Clinical Genetics: a Self-Study Guide for Health Care Professionals, a down-loadable course developed by the University of South Dakota
US National Coalition for Health Professional Information in Genetics
Human Genome Education Model Project, a joint project of Georgetown University and the US Alliance of Genetic Support Groups
American Academy of Family Physicians core educational guidelines for medical genetics
Education for Allied Health Professionals
National Society of Genetic Counselors
Genetics/Genomics Competency Center for Education
National Coalition for Health Professional Education in Genetics
Information about collecting family health history
Health Professionals:
Family History, American Medical Association
Family History Public Health Initiative, Office of Public Health Genomics, CDC
Resource Packet for Health Professionals, U.S. Surgeon General’s Family History Initiative
Use of Family History Information in Pediatric Primary Care and Public Health: A Supplement to the Journal Pediatrics (2007), Centers for Disease Control and Prevention
Public:
Family Health History, Genetic Alliance
Family Health History, Office of Public Health Genomics, CDC
Healthy Choices through Family Health History, Institute for Cultural Partnerships
Surgeon General’s Family History Initiative
Your Family History, National Society of Genetic Counselors
Your Family History, March of Dimes
Glossaries
The NGHRI Talking Glossary - This glossary of genetic terms was created by the National Human Genome Research Institute (NHGRI). Audio information, images and additional links aim to help people without a scientific background to understand common terms used in genetics.
The Human Genome Program Glossary - A glossary of genetic terms from the U.S. Department of Energy Human Genome Program. Here, you may also find a list of helpful links to further glossaries and dictionaries. One of the special features of the Human Genome Project information website is the dictionary of genetic terms.
Other glossaries of genome/human genetics terms - This website prepared by the University of Kansas Medical Centre presents an overview of glossaries related to genomics and human genetics. The glossaries are maintained by various organisations. You will also find terms for specific conditions and special dictionaries on this website.
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