Questions to Ask After Cancer Diagnosis

Being prepared reduces stress, so you can focus on your next appointment and navigating the journey ahead.

If you’ve been diagnosed with cancer, you likely have questions. Put yourself in the driver’s seat by getting the answers you need.

By learning as much as possible about your diagnosis and treatment options, you can play an active role in your care. That can help keep overwhelming feelings at bay.

“Asking the right questions and being well-informed is crucial for navigating the journey ahead because it can relieve stress and help with making decisions,” says Christine Schoener, RN, Geisinger’s operations director in hematology-oncology. “Take time to consider what you’d like to know and write down all your questions, so when you get to your next appointment, you’re prepared.”

Not sure what to ask? Ms. Schoener offers eight common questions to get you started.

Understanding your cancer diagnosis

Knowing as much as you can about your cancer diagnosis is fundamental in making informed decisions about your treatment and care.

Ms. Schoener suggests two critical questions to ask:

What type and stage of cancer do I have?

Ask your provider the specific type of cancer you have, where it’s located and its stage, which indicates how far the cancer has spread. Different cancer types require different treatment approaches, and this information will guide treatment options.

What’s my prognosis?

Understanding your prognosis helps you plan for the future and direct treatment decisions. Prognosis refers to the likely outcome of your cancer. It can vary based on factors such as cancer type and stage, your overall health and what treatments are available.

“It’s scary to hear about your chances of survival, but it helps you cope and make informed decisions about your care,” says Ms. Schoener. “Remember, each person is different and responds to treatment differently. Trust that your healthcare team is going to do everything in their power to help you.”

Exploring treatment options

After a cancer diagnosis, understanding your treatment options and how they might affect you is vital to preparing you for what lies ahead.

What are the treatment options for my type of cancer?

Your provider will talk with you about available treatments based on your specific type and stage of cancer, as well as your overall health and age. Options may include surgery, radiation therapy, chemotherapy, immunotherapy or a combination of these. If appropriate, your provider may also discuss options like clinical trials or a bone marrow transplant.

After you’ve considered your options, they’ll work with you to develop a customized treatment plan.

What are the benefits and risks of each treatment option?

Each type of cancer treatment has its own potential outcomes, side effects and long-term effects.

Your provider can advise you about things like:

Effectiveness of your treatment
How treatment will be given (e.g., by mouth, by injection)
Side effects and how to manage them
Risks of long-term effects

Are complementary or alternative treatment options available?

Besides conventional treatments, alternative or complementary therapies may be appropriate. These could include things like acupuncture, massage therapy or mind-body techniques, such as meditation or yoga. Discuss these options with your healthcare team to make sure they align with your overall treatment plan.

Will insurance cover my treatment?

Part of your treatment is understanding the financial implications. Before you decide on treatment, contact your insurance carrier to find out what your benefits cover. Your insurance company can also tell you how much you can expect to pay out of pocket. Don’t have insurance or need help with costs? Financial help is available. Talk to your healthcare provider.

Next steps after a cancer diagnosis

Beyond the treatment options for a cancer diagnosis, you may be contemplating some other issues.

Ms. Schoener suggests two important questions to consider:

How can I best manage symptoms and increase my quality of life?

Managing symptoms and enhancing your well-being will keep your life as normal as possible during your cancer journey. Your healthcare team can give you tips on managing side effects like pain, fatigue, nausea or appetite changes. They might also recommend supportive care services, including physical therapy, nutrition counseling or integrative medicine, to improve your quality of life.

“During treatment, communicate openly with your provider about any symptoms or side effects you’re having,” advises Ms. Schoener. “Each person reacts differently to treatment, and there may be alternative drugs, dosages or options to try.”

What support services or resources are available?

You don’t have to go it alone. Support groups, counseling services and educational resources can offer emotional support, help you navigate the healthcare system and connect you with others who have had similar experiences.

Your provider can connect you with resources for:

Managing symptoms
Communicating your healthcare preferences
Emotional support for you and your loved ones

Tips to getting the most out of your next appointment

As you ask questions, you’ll find there’s a lot to remember. To keep track of your provider’s answers, it’s a good idea to:

Take notes in a notebook
Use a smartphone or tape recorder to record responses
Bring a family member along to help take notes and provide support
Ask for written materials about your diagnosis, treatment options and potential side effects

If you’re seeing a Geisinger provider and you have a MyGeisinger/MyChart account, you can log in to review your after-visit summary and notes. More questions after your visit? Send your provider a secure message.

“There’s no such thing as too many questions,” says Ms. Schoener. “Your provider is here to support you and address your concerns at every step along the way. Don’t hesitate to ask for clarification or repeat information, if needed. By being prepared, you can make the most of your appointment and feel empowered in your cancer journey.”