HCQU resources
Find helpful resources for those with intellectual or developmental disabilities and their caregivers below:
- Recipe Book
- HRST User Account Template
- Health Risk Screening Tool (HRST): In-app Training Guide - IntellectAbility has built training topics into the HRST application. Users can access and/or repeat trainings any time.
- Health Risk Screening Tool (HRST): FAQ and Overview Handout - web-based screening tool that helps to detect health risks and destabilization early and prevent health related events, preventable illness, and death.
- Health Risk Screening Tool (HRST): HRST Cheat Sheet - Item O-Bowel Function
- Health Alert: 2021 – 2022 Flu Season Alert by: Gregory Cherpes, MD, ODP Medical Director
- The Fatal Five: 5 conditions most likely to result in death or health deterioration for persons with IDD.
- IDDSI -International Dysphagia Diet Standardization Initiative
- PA ASERT: An Autism Resource Guide
- IntellectAbility: Replacing Risks with Health and Wellness
- Sepsis Alliance
- Mental Health and Developmental Disabilities (MHDD)
- The American Academy of Developmental Medicine & Dentistry (AADMD)
- Geisinger’s Autism & Developmental Medicine Institute (ADMI)
- The Arc: The largest national community-based organization advocating for and with people with intellectual and developmental disabilities (I/DD) and serving them and their families.
- The NTG: National Task Group on Intellectual Disabilities and Dementia Practices
- Pennsylvania Developmental Disabilities Nurses Network (PADDNN)
- The Women's Center Inc.: Medical Advocacy Program provides services for victims of domestic and sexual violence, prevention activities, advocacy, and leadership to the healthcare community at Geisinger Bloomsburg Hospital and Geisinger Medical Center.
- Medical Advocacy Coordinator: The Women’s Center Medical Advocacy Program Hotline: 1.800.544.8293 (24/7)
- PA Department of Health
- CDC
- PA Department of Human Services
- Centre for Genetics Education
- Neighborly: A online tool to help you find free or reduced-cost services in your community
- AID in PA: a resource collection for Pennsylvanians in the autism and intellectual disability communities
- Brain Injury Association of America
- Development Disabilities Nurses Association
- Disability Rights Network of Pennsylvania
- Genetic Syndromes Websites (Sydney, Australia)
- PA Developmental Disabilities Council
- PA Family Network: Vision for equality/serving people with disability and their families
- Life Course Tools
- Supporting Individuals with Intellectual and Developmental Disabilities
- PA Department of Human Services Office of Developmental Disabilities
- Special Olympics Pennsylvania