HCQU resources
Find helpful resources for those with intellectual or developmental disabilities and their caregivers below:
- AID in PA: a resource collection for Pennsylvanians in the autism and intellectual disability communities
- Brain Injury Association of America
- Centre for Genetics Education
- CDC
- Development Disabilities Nurses Association
- Disability Rights Network of Pennsylvania
- Geisinger’s Autism & Developmental Medicine Institute (ADMI)
- Genetic Syndromes Websites (Sydney, Australia)
- IDDSI -International Dysphagia Diet Standardization Initiative
- IntellectAbility: Replacing Risks with Health and Wellness
- Life Course Tools
- Medical Advocacy Coordinator: The Women’s Center Medical Advocacy Program Hotline: 1.800.544.8293 (24/7)
- Mental Health and Developmental Disabilities (MHDD)
- Move Your Way Campaign -No matter who you are, you can find safe, fun ways to get active — to move your way. Physical activity can make your daily life better.
- Neighborly: A online tool to help you find free or reduced-cost services in your community
- ODP Health Alert - Accompanying Individuals to Emergency Rooms
- ODP Health Alert – FDA Drug Safety Communication
- ODP Health Alert - Lyme Disease and Other Tickborne Diseases in Pennsylvania
- ODP Health Alert – Possible Measles Exposure
- ODP Health Alert - Respiratory Viruses Vaccine Update
- ODP Health Alert – Summer Heat Safety
- ODP Health Alert – West Nile Virus and Other Mosquito-borne Diseases in Pennsylvania
- ODP Health Alert 2023: Call 911 in a Medical Emergency
- PA ASERT: An Autism Resource Guide
- PA Department of Health
- PA Department of Human Services
- PA Department of Human Services Office of Developmental Disabilities
- PA Developmental Disabilities Council
- PA Elks Home Service Program - Provides support and advocacy services to individuals of any age who have a developmental disability
- PA Family Network: Vision for equality/serving people with disability and their families
- PA Navigate is a statewide community information tool designed to address health and social care needs for Pennsylvanians by connecting them to community services
- Pennsylvania Developmental Disabilities Nurses Network (PADDNN)
- Recipe Book
- Sepsis Alliance
- Special Olympics Pennsylvania
- StationMD How-to Enroll Guide - How-to Enroll Guide for Individuals and Caregivers interested in Telemedicine for Individuals with Intellectual and Developmental Disabilities.
- StationMD-Telemedicine for Individuals with Intellectual & Developmental Disabilities (StationMD.com)
- The American Academy of Developmental Medicine & Dentistry (AADMD)
- The Arc: The largest national community-based organization advocating for and with people with intellectual and developmental disabilities (I/DD) and serving them and their families.
- The NTG: National Task Group on Intellectual Disabilities and Dementia Practices
- The Women's Center Inc.: Medical Advocacy Program provides services for victims of domestic and sexual violence, prevention activities, advocacy, and leadership to the healthcare community at Geisinger Bloomsburg Hospital and Geisinger Medical Center.
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